Rare Disease Day

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  3. Rare Disease Day

 

Rare Disease Day takes place on the last day of February each year.

The purpose of the day is to raise awareness to:

    • The general public, policy makers, public authorities, industry representatives, researchers, health professionals, and anyone who has a general interest in rare diseases.
Did you know?
    • A rare disease is defined as a condition affecting fewer than 1 in 2,000 people

    • There are more than 7,000 diagnosed rare diseases

    • About 1 in 12 people (nearly three million Canadians) have a rare disease

    • CDKL5 Deficiency Disorder is a rare disease

 

To learn more about rare diseases, visit https://www.rarediseaseday.org/ 

Rare Disease Day Video 2018:  https://youtu.be/3bxaP9FJKnk

Reference:  https://www.rarediseasefoundation.org/about