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Stories from families living with CDKL5
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Family Resources
Stories from families living with CDKL5
Alex Connolly
Chase Julian Paul Charles
Desirae Jardine
Eleanor May Newey
Gracie Spence
Julia and Maya Clark
Romane Leluc
Sybille Robert
Tia Staley
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Home
CDKL5
For Families
Conference Recordings
Link Canada
Membership
FAQ
Support
Useful Links
Newsletter
CDKL5 Parent Handbook
Stories from families living with CDKL5
Alex Connolly
Chase Julian Paul Charles
Desirae Jardine
Eleanor May Newey
Gracie Spence
Julia and Maya Clark
Romane Leluc
Sybille Robert
Tia Staley
Clinics
Research
Research Grant Opportunities
CDKL5 International Registry
Clinical Trials
Scientific Advisory Committee
Awareness
June is CDKL5 Awareness Month
Purple Day
Rare Disease Day
CDKL5 RawTalk
About Us
Mission Statement
Diversity and Inclusion Statement
Board of Directors
Volunteering
Fundraising
Host a Fundraiser
Coast to Coast for CDKL5
FundScrip
Jakob’s Memorial Campaign
Mabel’s Labels
Past Fundraising Initiatives
CDKL5 Canada Walk for a Cure
Contact Us
Donate Today!
