CDKL5 Canada launched a new awareness initiative during the COVID pandemic called CDKL5 “Raw Talk”.  Raw Talk videos aim to present varied topics on the CDKL5 Deficiency Disorder journey for families,  the CDD community and beyond. The videos will be raw and unplugged sent in from families. Every few weeks a new topic will be chosen and a request will be posted in the support groups for video submissions.  

We will be relaunching Raw Talk in January 2024. Until then please find previously recorded videos on our youtube page.

The hope of this initiative is to raise awareness and give families another platform to become involved and support others on this journey. If you have any suggestions for topics you would like to see covered in Raw Talk, please email [email protected].

If you are interested in submitting a video to Raw Talk, please complete and submit the Video Release Form to the email address above.