When your loved one is diagnosed with CDKL5 Deficiency Disorder (CDD), you want to do what you can to help them.  You want to ensure they have access to things like, new drug therapies, treatments and clinical trials. 

For this to happen, we need to organize the CDKL5 community in Canada.  The #LinkCanada platform will do this, but we need you to participate by registering on the platform.  Your information will be used for the sole purpose of organizing the community, and will assist in facilitating research and clinical trials and accessing treatments. 

Who can register on the Link Canada platform?
A parent, guardian or caregiver can register an individual on the platform.