Membership is free and is open to everyone! It is not limited to families with a loved one diagnosed with CDKL5 Deficiency Disorder, but also extended families, friends, associates, physicians…
CDKL5 Canada’s mission is “To pursue research into finding a cure and treatments for CDKL5 disorder and to raise public awareness of the disorder, while providing support to those affected by CDKL5 in Canada.”
As a non-profit we are required to foster our community membership as outlined in our by-laws. This allows us to serve the CDKL5 community better and connect and strengthen our relationships.
Some of the benefits of a membership with us are:
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- preferred rates for conferences and workshops
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- receive up to date information on research, clinical trials, and treatments
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- new members that are caregivers receive a package that contains valuable resources
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- support at the local level including clinics, and fundraisers
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- networking with families and researchers with a wealth of information
A strong membership allows CDKL5 Canada to be a strong advocate, and voice for all individuals, families, and friends affected by CDKL5 Deficiency Disorder.