Pancake Breakfast hosted in honor of Gracie Spence
The Spence family hosted a Pancake Breakfast fundraiser on in support of CDKL5 Canada. The Spence’s daughter Gracie has CDKL5 Deficiency Disorder (CDD) and they live in Winnipeg, Manitoba with their other two daughters. At their fundraising event, they raised over $3,000 for CDKL5 Canada!
Tia’s ‘Sweet 16’ Birthday Fundraiser
The Staley family hosted a ‘Sweet 16’ fundraiser in honor of their daughter Tia. She was diagnosed with CDKL5 Deficiency Disorder when she was 7 years old and not a single day has gone by where her family haven’t fostered HOPE. Hope for her well-being, for treatments and a cure. This online fundraiser raised $1,300 for CDKL5 Canada!
Brynn’s Bottle Drive for CDKL5
The Ladly family hosted a bottle drive in honor of their daughter Brynn. This was such an simple fundraiser. They shared the event online with friends and family and collected bottles in their barn. In just one month they raised over $2,500 for CDKL5 research!
CDKL5 Awareness Walk: St. John’s, Newfoundland
Two CDKL5 moms Jordan Stead and Gillian Lye hosted a CDKL5 Awareness Walk on June 17th in St. John’s, NL. They hosted the event in honor of their daughters Ebba and Jordan. We set up a fundraising page for them and in just one week they managed to raise $4,500!