CDKL5 Canada publishes a quarterly newsletter called Rare Reality. The newsletter is aimed at creating awareness, keeping donors updated, and to provide support to CDD families. The newsletter features a “family spotlight” in each edition, new research, family conferences and events, clinical trial information, grant announcements, and more.
Please find the links to our previously published editions of Rare Reality below. If you wish to subscribe to the newsletter, you can sign up at the bottom of the website.