CDKL5 Supporting Organizations:
Rare Disease Networks and Genetic Support
Canadian Organization for Rare Disorders (CORD)
Regroupement québécois des maladies orphelines
Orphanet
Epilepsy
Epilepsy Canada
Canadian Epilepsy Alliance
Epilepsy Ontario
SUDEP Aware
Rett Syndrome
Ontario Rett Syndrome Association (ORSA)
International Rett Syndrome Association (IRSF)