About the Event:
Coast to Coast for CDKL5 Canada is a month-long fundraising event aimed at raising awareness and funds to support CDKL5 Canada’s mission to support families and research for a brighter future for all impacted by this devastating diagnosis.
How to Participate:
- You can create a team and recruit team members who help contribute to your team’s steps and share your team fundraising page
- You can support a team by making a donation on their fundraising page and sharing that page on your socials!
Key Dates:
Registration Opens: May 1st
Event Kick-off: June 1st
Closing Ceremony: June 30th
(Time is based on Eastern Standard Time (EST) zone)
How to Register:
Click here to follow the link for complete registration instructions
FAQ’s
- How do I participate in Coast to Coast for CDKL5 Canada?
To participate, simply follow the registration steps above. Encourage your friends and family to join the cause and support our fundraising efforts.
- Can I join as part of a team?
Yes, please create or join as part of a team. Teams can consist of up to 50 members, so gather your friends and family and walk together for CDKL5 Canada.
- How can I track my steps?
Participants can track their steps using fitness trackers like Fitbit, Garmin Connect, Apple Health, or Google Fit. Manual entry of activity is also possible on our platform. For step-by-step instructions on how to track your steps, please see the registration instructions.
- Is there a registration fee?
There is no registration fee to participate in Coast to Coast for CDKL5 Canada. However, we encourage participants to set fundraising goals and gather donations to support CDKL5 Canada.
- How are funds raised during the event used?
All funds raised during Coast to Coast for CDKL5 go towards supporting CDKL5 Canada’s mission. Your contributions help fund vital research projects and provide support to families affected by CDKL5 disorder.
- Are there prizes?
Yes, we offer prizes and incentives throughout the event/month. Stay tuned for announcements on weekly challenges and milestone rewards throughout.
Join us on this journey to make a difference for individuals and families affected by CDKL5 Deficiency Disorder.
Every dollar raised, every step taken, and every story shared contributes to building a foundation of hope, understanding, and support for the CDKL5 community.