Registration is now open for the 3rd Annual Coast to Coast for CDKL5! 

Join families, friends, and supporters come together to raise awareness and critical funds for CDKL5 Deficiency Disorder through this virtual step challenge. Every step taken helps bring hope, connection, and support to the CDKL5 community.

Last year, our second annual Coast to Coast for CDKL5 was a huge success! In 2025, we had 583 active participants across 16 teams, with 5 teams successfully completing the challenge and collectively crossing the country. Together, our community raised an incredible $64,372 — surpassing ourgoal and raising over $15,000 more than the previous year!

It’s amazing to see families, friends, and supporters from coast to coast unite throughout the month of June. This challenge is about more than steps — it’s about showing the world that we will continue to walk, run, and rally until families affected by CDKL5 have answers, treatments, and brighter days ahead.