CDKL5 Canada launched a new awareness initiative during the COVID pandemic called CDKL5 “Raw Talk”.  Raw Talk videos aim to present varied topics on the CDKL5 Deficiency Disorder journey for families,  the CDD community and beyond. The videos were raw and unplugged, sent in from families. If you would like to view these previously recorded videos, you can find them on our youtube page.

The hope of this initiative was to raise awareness and give families another platform to become involved and support others on this journey.