Coast to Coast for CDKL5 

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Our second annual Coast to Coast for CDKL5 was a huge success!

Once again, our incredible community of CDKL5 families, friends and donors showed up with heart, determination, and purpose. This year (2025) we had 583 active participants within 16 teams. We had 5 team finish the challenge and they managed to collectively cross the country. 

It’s incredible to see our community come together, built across provinces, uniting our country during the month of June. It’s about showing the world that we will walk, run, and rally until families affected by CDKL5 have answers, treatments, and brighter days ahead. We are also so excited to announce that through our collective efforts, we raised $64,372!! We exceeded our goal of $60,000 and raised over $15,000 more than we did last year!

 

We’re also incredibly grateful for our event sponsors, whose generosity helped bring this event to life. Thank you to Motology School, Mucksy Builds, Blinds & Drapes Etc,. Medicine Market Pharmacy, Blacksbridge, and Red House Realty.

We have a lot to be proud of. We increased awareness, generated critical funding for research, and most importantly, brought hope to the families who need it most. From the bottom of our hearts, thank you!