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Box 469 Clarksburg PO Clarksburg ON, N0H 1J0

info@cdkl5canada.ca

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  • For Families
    • Quarterly Newsletter
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    • Membership
    • Resources
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    • Support
    • Useful Links
    • Stories from families living with CDKL5
      • Alex Connolly
      • Chase Julian Paul Charles
      • Desirae Jardine
      • Eleanor May Newey
      • Gracie Spence
      • Julia and Maya Clark
      • Romane Leluc
      • Sybille Robert
      • Tia Staley
    • Clinics
  • Research
    • Research Grant Opportunities
    • CDKL5 International Registry
    • Clinical Trials
    • Scientific Advisory Committee
  • Awareness
    • June is CDKL5 Awareness Month
    • Purple Day
    • Rare Disease Day
    • CDKL5 RawTalk
  • About Us
    • Mission Statement
    • Diversity and Inclusion Statement
    • Board of Directors
    • Annual General Meeting
    • Volunteering
  • Fundraising
    • Host a Fundraiser
    • Coast to Coast for CDKL5 
    • FundScrip
    • Jakob’s Memorial Campaign
    • Mabel’s Labels
    • Past Fundraising Initiatives
    • CDKL5 Canada Walk for a Cure
  • Contact Us

DONATE TODAY!

Stories from families living with CDKL5

You are here:
  1. Home
  2. Family Resources
  3. Stories from families living with CDKL5
  • Alex Connolly
  • Chase Julian Paul Charles
  • Desirae Jardine
  • Eleanor May Newey
  • Gracie Spence
  • Julia and Maya Clark
  • Romane Leluc
  • Sybille Robert
  • Tia Staley

CDKL5 Canada is a registered charitable organization, dedicated to finding a cure for CDKL5 disorder.

Registered Charity number: 821379930RR0001

Contact info

Call us

+1-705-888-3213

Email

info@cdkl5canada.ca

Location

CDKL5 Canada PO Box 469 Clarksburg ON, N0H 1J0

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Menu

  • Home
  • CDKL5
  • For Families
    • Quarterly Newsletter
    • CDKL5 Parent Handbook
    • Conference Recordings
    • Link Canada
    • Membership
    • Resources
    • FAQ
    • Support
    • Useful Links
    • Stories from families living with CDKL5
      • Alex Connolly
      • Chase Julian Paul Charles
      • Desirae Jardine
      • Eleanor May Newey
      • Gracie Spence
      • Julia and Maya Clark
      • Romane Leluc
      • Sybille Robert
      • Tia Staley
    • Clinics
  • Research
    • Research Grant Opportunities
    • CDKL5 International Registry
    • Clinical Trials
    • Scientific Advisory Committee
  • Awareness
    • June is CDKL5 Awareness Month
    • Purple Day
    • Rare Disease Day
    • CDKL5 RawTalk
  • About Us
    • Mission Statement
    • Diversity and Inclusion Statement
    • Board of Directors
    • Annual General Meeting
    • Volunteering
  • Fundraising
    • Host a Fundraiser
    • Coast to Coast for CDKL5 
    • FundScrip
    • Jakob’s Memorial Campaign
    • Mabel’s Labels
    • Past Fundraising Initiatives
    • CDKL5 Canada Walk for a Cure
  • Contact Us

Donate Today!