CDKL5 Canada is proud to share CDKL5 Deficiency Disorder Parent Handbook.  The handbook was created in 2013 and revised in 2024. The guide details a brief introduction on the disorder, recognizing and diagnosing, clinical symptoms with treatment and therapeutic options that may be helpful for individuals living with CDKL5 disorder.

We would like to thank the doctors who contributed to this handbook. They are listed in the acknowledgements on the last page.