CDKL5 Deficiency Disorder can be an overwhelming diagnosis to receive but In Canada there are a number of national and provincial resources available to support you on your journey. We have compiled this list as a jumping off point but by no means is it complete. It is a work in progress and we hope that families will help us broaden this list of resources available across the country as they discover them. If you would like to submit resource links to be added to this page please email Suchi Jobanputra at [email protected].

PLEASE CLICK HERE FOR A LIST OF NATIONAL RESOURCES IN CANADA.

PROVINCIAL RESOURCES

Please click here to view our list of resources in ALBERTA.

Please click here to view our list of resources in BRITISH COLUMBIA.

Please click here to view our list of resources in ONTARIO.