Tia Staley Walk for CDKL5 Research

COME JOIN US for the 3rd Annual Tia Staley Walk for CDKL5 Research!!
Sunday 16, October 2016

Tia, along with friends and family will walk from 55 Glen Road, through the beautiful neighborhood of Rosedale to 150 Glen Road, Whitney Park and back.

Tia is an twelve-year-old girl diagnosed with the CDKL5 Disorder. The Tia Staley Walk for CDKL5 Research is a walk of HOPE for all diagnosed with this rare Neurological condition. Most individuals with this disorder are affected with an early-onset of difficult to control seizures. Many have gait abnormalities and are unable to walk. Tia will lead this 2k walk in honor of all children affected by the disorder. Family, friends and generous donors like you in an effort to raise funds will join Tia.

All proceeds from this event will go to CDKL5 Canada.

Contact Sangeeta Staley at sstaley@cdkl5canada.ca to obtain:

  • Registration form
  • Pledge form
  • Donation form
  • Walk brochure

You can support Tia and CDKL5 Research by:

  • Registering to walk - single registration $25.00
    Individuals 11-16 years $15.00
    Children under 10 years are free.
  • If you are unable to attend this event please sponsor Tia through her CanadaHelps Peer-to-Peer Social Fundraising page Tia Staley Walk for CDKL5 Research - 3rd Annual
  • You can also make a Donation on CDKL5 Canada's website, in message box "Tia Staley Walk for CDKL5 Research".
  • Follow updates for this event on Facebook

Event Schedule - Sunday 16, October 2016

9:00 am - Registration
10:15 am - Pre-Walk Briefing
10:30 am - Walk starts

Location:  55 Glen Road, Toronto, Ontario, M4W 2V3