Tia Staley Walk for CDKL5 Research

COME JOIN US for the 4th Annual Tia Staley Walk for CDKL5 Research!!
When:  Sunday 01, October 2017
Where: Variety Village - 3701 Danforth Avenue, Scarborough, ON M1N 2G2


Tia is a 13-year old girl diagnosed with CDKL5 disorder.  She lives with her parents and 10-year old sister Emma in Toronto.  This March Tia reentered the school system after being homeschooled since the age of five.  CDKL5 disorder affected Tia to the extent since age five that she was unable to attend regular school because of multiple hospital admissions ranging from status epilepticus to metabolic issues.  Luckily today her health is good and she is able to attend school which she thoroughly enjoys. 

CDKL5 is a rare x-linked neurodevelopmental disorder.  Most individuals with this disorder are affected with early-onset difficult to control seizures.  Many have gait abnormalities and are unable to walk.  The Tia Staley Walk for CDKL5 Research is a walk of HOPE, Tia will lead this 1K fun walk in honor of all children affected by CDKL5 disorder. 

All proceeds from this event will go to CDKL5 Canada.

Contact Sangeeta Staley at sstaley@cdkl5canada.ca to obtain:

  • Registration form
  • Pledge form
  • Donation form
  • Walk brochure

You can support Tia and CDKL5 Research by:


  • Single registration - $25.00
  • Individuals 11-16 years - $15.00
  • Children under 10 years - free
  • Individuals with CDKL5 disorder - free

If unable to attend you can support this event by.

Event Schedule - Sunday 01, October 2017

9:00 am - Registration
9:50 am - Pre-Walk Briefing
10:00 am - Walk starts

Location:  Variety Village.  3701 Danforth Avenue Scarborough, Ontario M1N 2G2
By Bus:  They have a bus stop right outside! Take the 12A from Victoria Park Station.
FREE parking onsite
Wheel-Trans accessible